About the Association

About the AGSD

Association for Glycogen Storage Disease

1542 Flammang Dr.
PMB 1004
Waterloo, IA 50702

The Association for Glycogen Storage Disease [AGSD] is a parent and patient oriented support group that is advised by a group of experienced medical professionals.

The AGSD was established in 1979 in order to create an organization which would be a focus for parents of and individuals with all types of GSD to communicate by:

  • sharing their successes and concerns
  • sharing useful findings
  • providing support
  • creating an awareness of this condition for the public
  • stimulating research in the various forms of glycogen storage diseases and have the results communicated to the parents, affected individuals, and the public as soon as possible.

Mission Statement

The purpose of the Association for Glycogen Storage Disease shall be to protect and promote the best interests of all persons and families affected by Glycogen Storage Disease [GSD]; to promote the establishment, improvement, and management of facilities for the treatment, study, education, shelter, recreation, recuperation and other general benefit to GSD-affected persons; to act as a vehicle of communication on GSD-related matters to patients, families, professionals, and the public; and to act as a focus for scientific, educational, and charitable activities related to the disease.